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Charity Comedy Night Benefiting the EFGLA
Join us for a good laugh and smiles this Thursday, April 8th at 8:00 pm at Melody Bar & Grill in Westchester for the Charity Comedy Night to benefit the Epilepsy Foundation of Greater Los Angeles. More information…
Lifestyle Changes for Brain Health
Attend the upcoming Second Saturday Seminar on April 10, 2010 when Dr. Diane Stein speaks about "Lifestyle Changes for Brain Health." Dr. Stein is an adult and child neurologist with expertise in epilepsy and is also the President of Stein Life Child Neurology Medical Specialists Inc. RSVP to attend this free educational Seminar is encouraged by contacting the local Epilepsy Foundation at 800-564-0445 or email.
Great Job, Team Epilepsy 2010!
Team Epilepsy
had over 30 participants, raised nearly $4,000 (and still counting!) and touched many lives by their courage and outreach at the Los Angeles City Marathon on March 20 and March 21, 2010. Members of Team Epilepsy hit the gravel for the 5K Run/Walk at Dodger Stadium or the “Stadium to Sea” Marathon to make a difference by increasing awareness about epilepsy and raising funds to support local programs and services. Some of the members of Team Epilepsy and their fans celebrated this great accomplishment by joining the “Meet the Epilepsy Experts” Reception inside a special Dodger Stadium Suite. We look forward to making this a bigger event in 2011.
Legislative Update on Diastat Bill
A big thank you to the hundreds of support letters urging the Senate Education Committee to vote YES on SB 1051 (Diastat) on March 24th! While a unanimous vote of YES would have been ideal, we are thankful that your voices spoke loud enough to keep the bill alive for yet another hearing scheduled for April 14th. Epilepsy California is working closely with the bill author (Senator Huff
) to find common ground among opposing entities to move this bill forward and ensure the safety of our children with epilepsy who need this emergency seizure rescue medication in school. It is crucial that you (and your friends and loved ones) continue to alert the local Epilepsy Foundation about your support of the bill by sharing your name, home address, and story with Rebekkah by email. We will keep you posted with updates on this important effort.
Care and Cure for Children - Epilepsy Benefit Dinner
We are excited to tell you about our Care and Cure for Children – Epilepsy Benefit Dinner at the Regent Beverly Wilshire Hotel on June 9, 2010. We will be honoring Amy Pascal, co-chairman of Sony Pictures Entertainment. This special event helps support pediatric epilepsy specialists, epilepsy research, and programs that care for and connect children with epilepsy and their families in this region. Please get involved and learn more at www.CareandCure.org.
Still Time to "Save Epilepsy Teen Retreat"
As you may know, Epilepsy Teen Retreat is in jeopardy of being cancelled this year but there is still time to help! We have extended the deadline for our fundraising goal until April 30, 2010. Together…we can surely meet and surpass our goal! For more information and to make a donation, please visit www.SaveEpilepsyTeenRetreat.kintera.org.
Switching of Antiepileptic Medications
It’s a growing concern that seizures and side-effects may be affected by switching from one manufacturer’s formulation of an antiepileptic drug (AED) to another (generic-to-generic, brand-to-generic, etc.). In last month’s Enews, we shared how the Epilepsy Foundation has contacted insurance companies to stress the importance of continuity of AED formulation for some people with epilepsy. Since then, various insurance companies have responded indicating that they will allow continuity of formulation when the physician indicates there is a medical need. The Foundation continues its advocacy campaign through education and outreach to the community. Stay informed by remaining connected to your local Epilepsy Foundation and visiting a resourceful website,
Medication Switching.
Upcoming Events
• April 8: Charity Comedy Night
• April 10: Second Saturday Seminar
• June 9: Care and Cure for Children - Epilepsy Benefit Dinner
• June 20-25: Epilepsy Teen Retreat
• August 21: Epilepsy Family Picnic
• October 17: Epilepsy Freedom Walk
• November 6: Epilepsy Brain Storm Summit
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