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LEND Training Program
The USC University Center for Excellence in Developmental Disabilities, Childrens Hospital Los Angeles is currently recruiting parents for the Family Support discipline in its 2010/2011 Leadership Education in Neurodevelopmental & Related Disorders (LEND) training program. They are seeking parents of children with special needs who have experience working with other parents or as an advocate for systems change and are interested in receiving advanced training in their multi-disciplinary program. More information...
Hope for Diastat Bill Rests with YOU
Thanks to your support and advocacy efforts, the Diastat bill (SB 1051) has passed through the Senate Education and Health Committees. Unfortunately, Senate Leadership put the bill in the "suspense" file, placing it on hold due to strong union opposition. However, there is still hope as Senate Leadership has the power to free this bill from the Appropriations Committee and it is your collective voice that will make the difference. Call Senator Steinberg (916-651-4006) and Senator Kehoe (916-651-4039) TODAY to register your support of SB 1051 and kindly request that the bill be released from Appropriations. For questions, contact Rebekkah at (310) 670-2870.
Teen Retreat Applications Still Being Accepted
Don’t delay on submitting your application to attend the 10th Annual Epilepsy Teen Retreat on June 20 – 25 in Lake Arrowhead. Applications are still being accepted but need to be completed and turned in ASAP! This is an opportunity that should not be missed. Contact Patricia at (310) 670-2870 for more information and to request an application packet.
Avon Fundraiser for Epilepsy
Avon representative, Kristy Mandigo, kicks-off her month-long e-party fundraiser for epilepsy this Friday, June 11th. Up to 15% of sales will come to the local Epilepsy Foundation to support Statewide Advocacy. Join Kristy and her son, Alexander, in their efforts to help advocate statewide for the causes of California's children with epilepsy - - while treating yourself or someone you love to a little pampering
. The first customer to make a purchase of $75 or more receives a generous basket of bath and body goodies! Free shipping on all orders $30 or more and orders will be shipped directly to customer. Begin shopping immediately by visiting kmandigo.avonrepresentative.com/
or read here for more information.
Dietary Therapies to be Discussed at Upcoming Summit
In partnership with The Charlie Foundation To Help Cure Pediatric Epilepsy, the upcoming Epilepsy Brain Storm Summit
conference on Saturday, November 6, 2010 in downtown Los Angeles will focus on Dietary Therapies for Epilepsy, including but not limited to the Ketogenic Diet. This annual bilingual conference also offers workshops covering other topics of interest to individuals affected by epilepsy and their families. Contact Rebekkah at (310) 670-2870 for more information.
Freedom From Seizures & Freedom To Succeed
Have you heard the news? The Epilepsy Freedom Walk is taking place on Sunday, October 17, 2010 and switching venues to the world-famous Rose Bowl. You can expect even more exciting updates being announced to you very soon, so start chatting up your family and friends now…what will your freedom team name be? Call Rebekkah at (310) 670-2870 if you have any questions.
Upcoming Programs, Events & Activities
• June 9, 2010 - Care & Cure for Children - Epilepsy Benefit Dinner
• June 19, 2010 - Therapy Group for Adults with Epilepsy
• June 19, 2010 - Second Saturday Seminar
• June 20 - 25, 2010 - Epilepsy Teen Retreat
• July 17, 2010 - Parent Support Group
• August 21, 2010 - Epilepsy Family Picnic
• October 17, 2010 - Epilepsy Freedom Walk
• November 6, 2010 - Epilepsy Brain Storm Summit
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